We are particularly keen to hear from anyone who has been diagnosed with ME/CFS, if they are willing for us to include them in the ME Disease Register and to participate in any appropriate trials or research that might arise. Download and complete the Application form and return it to us.
We will review your symptoms to confirm that your diagnosis is in accordance with our Criteria. We may also need to contact your GP to ascertain what other checks have been done to eliminate other possible conditions.
We would be especially interested to hear from potential candidates who would be willing to offer blood for our ME blood bank. Best of all those that would be willing also to sign a letter of authority for us to obtain tissue and/or organ samples – post-mortem of course.
GPs
If you are a GP we hope you would like to work with us to promote a better understanding of ME and to use our freely downloadable Proforma and Guidance Notes for this purpose. Better still if you and a group of your colleagues would like us to give a short seminar on ME/CFS we will endeavour to arrange a suitable speaker, who is a specialist in ME.
Individual
If you are one of those unfortunates whose GP is sceptical about ME as a physical condition, you might like to self complete a proforma and take it to him/her and ask for his/her views on what you have filled in. If this elicits any spark of interest you could give him/her a copy of the Guidance Notes and ask if he/she can positively discount any of the other chronic fatigue presenting conditions listed.
Maybe you might consider an approach to your own GP, the practice manager the PPG to see if they would consider adopting this approach?
All we are attempting to do is in line with our Objective of trying to improve the lot of those unfortunate enough to be a sufferer (or indeed the family/carer for such people) from ME/CFS. This sort of effort takes time and money*; so if you feel you could offer either or both then please do contact us.
*Cheques made payable to Resumecfs and sent to
RESUME CFS Charity
32 Lower Street
Harnham
Salisbury, Wilts
SP2 8EY